Writer Carla Sosenko, who suffers from a rare congenital disorder called Klipper-Trenaunay Syndrome (K-T), lives in Brooklyn, New York and is planning on writing her memoirs. In an article for Marie Claire Magazine, Carla explains how K-T affects her emotional and physically.

Carla writes for Marie Claire: “I was born with the rare circulatory disorder Klippel-Trenaunay syndrome (K-T), which translates differently for everyone who has it. For me, it means my right leg is larger than my left and trails slightly when I walk; my back is an uneven, fatty slab with a dense lump above the waist (which a guy in high school once called a meatball); and a gigantic port-wine stain reaches around my broad torso and down toward my right thigh. I know it could have been worse. I might have been blind; I might have needed amputation. I know that I’m lucky.”

In Marie Claire, Carla reveals how difficult her dating life is and how she finally came to terms with whom she is and how she looks after a series of dreadful dates. So instead of omitting her little imperfections and being afraid of other persons’ reactions, Carla decided to make some corrections to her dating profile.

Carla concludes: “So I’ve updated my dating profile. I don’t name my condition, I don’t describe it in detail, but there it is, a small, vague shout-out to my uniqueness (“I was born with a bizarro congenital disorder that affects my body a bit”) and an invitation to take me or leave me. Now when a guy tries to decide if I’m date-worthy, he can consider the shininess of my hair, the bands I like, and K-T. Because if I can learn to relax a little about it, to love my lumps and bumps, maybe someone else will, too.”

You can read Carla Sosenko’s story on how to date with K-T syndrome “What Guys I Date Don’t Know” at Marie Clarie.

Carla Sosenko Photos

[image: Marie Claire]